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Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 185 Location: Lowestoft, Suffolk
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Hi At a recent GP appointment I was advised to use paracetamol to top up if the pain isn't cleared by my current medication. I've just had a flare up and used Panadol (paracetamol with caffeine) but this didn't really help at all. Just wondering if any of you can recommend an over the counter painkiller that has proven to help you take the edge off? Angie Be yourself - everyone else is taken. XX
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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Hi Angie
I take paracetamol too and it does help. I seem to recall reading somewhere- I think it was on the forum, that you need to take a small dose everyday rather than just as and when it's needed- obviously I don't want to recommend this in case I'm wrong ( hopefully someone will read this and confirm/ correct me) although I do take one tablet every morning then top up if necessary. I was told not to take ibuprofen as it's not suitable with methotrexate. Hope this helps
Maria
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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Me again
Forgot to mention- was this flare a one off or are they recurring? If so, your meds might need reviewing. My rheummy nurse told me to contact her if I kept getting flares and the dosage of mtx could be increased.
Maria
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Rank: Advanced Member  Groups: Registered
Joined: 1/21/2012 Posts: 388 Location: Powys
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Hi Angie, Just wondering what other meds you take? Do you take any other painkillers? I know some can be used in combination but others not, so perhaps your gp said that because it is safe.
I take cocodomol on prescription, it comes in different strengths according to your needs. It is a combination of paracetamol and codeine and seems to work well for me, but I do have to be careful to eat a roughage rich diet with it. I was also given tramadol at one time which I was told I could use with it but did not suit me.
I was told by my rheumy nurse to take a lower dose of painkillers continuously rather than at odd times as it works better, but I also know that continuous use of some can actually cause headaches. I think when you have such a chronic illness painkillers should be given on prescription as a matter of course.
I think a call to your rheumatology nurse would be helpful. She may suggest something better or perhaps as Maria said you need to be reassessed in your treatment. Paracetamol alone does nothing for me either. Hope you find something to help, pain needs to be controlled. Zena xx
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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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hi, i argree go back to gp, paracetomols dont work for me either, i have co-cods but can only take 1 at a time if i take the 2 i itch for hours,i find if i space them out 1 at a time all day it works for me, i am on 25mg inj mtx so need to be carefull what i take,try and get some cool air off and on in the day,ie if you are in an office open a window for a few seconds to clear the stuffy feeling,watch the pills with caffiene in as they are headache making,i can take the odd nurofen but i have learned to watch foods and drinks (non alcohol)as some do spark it off, hope you get solution,dorothy
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Angie
It is always difficult in getting pain medication right and the answer is to take the right dose continuously. I use paracetemol and it works wonders after following my GP's advice. Take the full dose every day i.e. 2 x 500 mgs spaced out over 24 hours to a maximum of 8 tablets a day. Take them each day even if you are not in pain. You need to build up the medication in your body for a couple of weeks to see the benefits. Whatever you do don't dip in and out of it otherwise it won't work.
If this does not work then you need to go back to your GP. Don't take any other over the counter medications without checking with your GP. You do not mention if you are on an anti-inflammatory such as Naproxen. Most over the counter medications such as Nurofen or Anadin Extra contain an anti-inflammatory and you may be doubling up.
There are some super duper pain killers available through your GP such as Tramadol etc if you are suffering.
Good luck
Jackie xx
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Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 185 Location: Lowestoft, Suffolk
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Hi All Thanks for the advice so far. I am in remission with the odd flare up although the current one is being a bit of a sod, not helped as I also slipped over and hurt knee & ankle. I am on Hydroxy and Naproxen. Was 'told off' as I wasn't taking Naproxen regularly but I do now. As I'm not keen on pill popping, I have just used top up painkillers when in trouble. Not sure I like the idea of taking paracetamol every day. My Dad did this for years due to headaches and whilst I don't know whether it was the cause, when he became ill doctors couldn't believe he wasn't a heavy drinker due to the state of some of his organs. Don't think I have a rheumy nurse but maybe I will ring the department and see. Sounds like Paracetamol & Codeine may be worth a try first. Yours in flaredom Angie Be yourself - everyone else is taken. XX
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Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 185 Location: Lowestoft, Suffolk
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Rang Rheumatologists secretary as still having problems. She was most indignant saying that I'd had an appointment in December & Dr doesn't want to see me for another year. Had to explain that things had changed and I needed some advice. She's put me on the list for the Rheumy Nurse to ring me. Trying paracetamol & codeine at the moment, think it has eased a little but still fizzing. Angie Be yourself - everyone else is taken. XX
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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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oh angie you really are not getting any where with the dept,i must admit i as yet havent had a problem but if i do i wont hold back,she really should not have spoke to you that way as the nurses will ask the doc for advice anyway and he will see you earlier if he feels the need, i have had to see him inbetween appts before and was ok,usually it starts with the nurse visits and advice then if they cant help onto doc, bet secretary was on a pmt day,dorothy
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Rank: Advanced Member  Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Hi Angie - yes, I echo what the others say - talk to the rheumy nurse again and ask for help. I take naproxen daily - also omeprazole to protect my tummy- and I really do start to notice if I miss a dose, but otherwise am very well and consider myself in remission. I wouldn't bother with OTC meds because they won't be as effective as the prescribed painkillers - but that's just me! Ocassionally I do take 2 naproxen in a day, but usually it's just one. I'd rather take an extra pill and get on with my life rather than endure lots of pain again - but maybe I'm being a wimp - hahahah! Best wishes - Sylvia xx Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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My 2 cents Paracetamol taken regularly = good Codeine is very good, but can cause headaches, hence the reason why it is prescribed in co-codamaol / solpadol preparations - which contain paracetamol. But if you're taking regular paracetamol, you should use codeine straight to avoid OD'ing. Caffeine causes headaches so I personally avoid any pain relief that includes caffeine. If you get bunged up, fibre is good, as is Fybogel (on prescrip or OTC) Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Paul Barrett wrote:My 2 cents
Paracetamol taken regularly = good
Codeine is very good, but can cause headaches, hence the reason why it is prescribed in co-codamaol / solpadol preparations - which contain paracetamol. But if you're taking regular paracetamol, you should use codeine straight to avoid OD'ing.
Caffeine causes headaches so I personally avoid any pain relief that includes caffeine.
If you get bunged up, fibre is good, as is Fybogel (on prescrip or OTC) Of course, one of the issues with taking paracetamol is that it's a max of 8 tabs a day = 6 hour interval whilst it's potency is limited to 4 hours. So another good technique when things are bad is to use paracetamol alternated with an NSAID such as ibuprofen on a 3 hour cycle, if your stomach can tolerate an NSAID. The intervals and max tabs per day are similar to paracetamol so if you alternate them you will keep potency up. You can buy combo products of paracetamol and ibuprofen. I avoid those because while they are useful for intense pain, you lose the benefit that alternating doses provides for 'potency coverage.' Celecoxib (Celebrex) is a good gut friendlier NSAID if you can't stomach (literally) ibuprofen. Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 185 Location: Lowestoft, Suffolk
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Well, have listened and experimented. Paracetamol definitely wasn't the answer. Have been using 2 Naproxen (1 morning, 1 night) and just topping up with the parecetamol/codeine mix - my GP assures me I won't get addicted unless I take it when I am not in pain. Co-codamol made me seriously constipated and didn't really feel the benefits either! Will have a chat with the Rheumatologist in December. Now have to worry about the NSAIDs causing a blooming heart attack. Thanks all. Angie Be yourself - everyone else is taken. XX
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